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兒童天賦基因檢測觸及倫理紅線
2020-01-11 17:59   来源:  www.campusaux.com   评论:0 点击:

兒童天賦基因檢測觸及倫理紅線背景:媒体报道,电商平台有不少“儿童天赋基因检测”产品,价格从几百到几千

背景:媒体报道,电商平台有不少“儿童天赋基因检测”产品,价格从几百到几千不等。据说,只要几毫升唾液和几百元检测费,就能知道孩子在哪个领域有天赋,适不适合学舞蹈、美术、运动、音乐……

Background: the media report that e-commerce platform has a number of \"child talent genetic testing\" products, prices range from hundreds to thousands. It is said that only a few milliliters of saliva and hundreds of dollars of testing fees can tell the child in what field of talent, suitable for learning dance, art, sports, music.

光明网发表熊志的观点:现有研究证明,人的智力水平、性格特征等,都会受到基因影响,一些独特的基因点位也能够反应出人的特征。这类基因检测技术,已经被运用到一些疾病预防上面。但即便是疾病预防,技术都远未成熟。它需要专业权威机构的严谨检测,检测结论也不是决定性的,很多疾病都是受后天环境影响。此前媒体报道“一滴唾液就能筛查出癌症”的新闻时,就有不少专业人士指出其不严谨。一个孩子擅长音乐还是画画,有没有运动天赋,是否有“领导力”,这些兴趣爱好和成长特征很大程度都是后天培养的。商家打着基因检测的旗号,无非是利用家长对相关技术的不了解,以及“不输在起跑线上”的急切心理,来“收割”家长。基因检测服务不像普通商品,是很难求证检测结果的真伪的,商家并没有多少风险成本。如果在商家不靠谱的忽悠之下,家长听之信之,并按照商家的误导建议对孩子进行培养,无视孩子自身的兴趣所在,恰恰可能浪费孩子的天赋。相对于姓名、电话、住址等身份信息,基因信息是一个人更加独特的编码,一旦泄露,危害更甚。相关职能部门对市面上的各种基因检测,包括有没有涉及虚假宣传,基因信息的保存使用等,需要严格监管。电商平台同样需要严格审核,不能变相纵容商家去忽悠家长。

Guangming net published xiongzhi's view: existing studies have proved that people's intelligence level, personality characteristics and so on, will be affected by genes, some unique genetic points can also reflect human characteristics. Such genetic testing techniques have been applied to some disease prevention. But even disease prevention is far from mature. It requires rigorous testing by professional authorities, and the conclusions are not conclusive, and many diseases are affected by the acquired environment. Previously, when the media reported that \"a drop of saliva can screen for cancer,\" many professionals pointed out that it is not rigorous. Whether a child is good at music or painting, with or without athleticism and leadership, these hobbies and growth traits are largely nurtured. Under the banner of genetic testing, merchants are simply using the parents'lack of understanding of the relevant technology, and the eagerness of \"not losing on the starting line\" to \"harvest\" parents. Genetic testing services are not like ordinary goods, it is difficult to verify the authenticity of the test results, merchants do not have much risk costs. If the business is not reliable under the hoodlum, parents listen to it, and in accordance with the business's misleading advice to the child training, ignoring the child's own interests, precisely may waste the child's talent. Genetic information is a person's more unique code than identity information such as name, telephone, address, etc. Relevant functional departments on the market for a variety of genetic testing, including whether there are false publicity, the preservation and use of genetic information, and so on, need to be strictly regulated. E-commerce platform also needs to be strictly audited, cannot connive at the business to hoodwink parents.

小蒋随想:“基因检测天赋”可能成为“血统论”的变种,值得警惕。也就是,从“骨子里”肯定或否定一个人潜在的人生高度,要么给一些人贴上“高大上”标签,要么论断一些人“不行”。从这一角度看,这不光涉及对基因认知的成熟与否,而且牵扯伦理道德问题。在对基因研究较多的医学领域,能否开展一项新的课题研究或应用,往往要经过道德伦理审查。审查的目的是,防止技术被滥用,避免研究跑偏,设定道德底线……“儿童天赋基因检测”是不是由正规机构开展,首先就要打上一个问号。何况,这种检测还涉嫌触及伦理红线。对家长而言,不要以为给孩子测一测“无伤大雅”,而是要想想检测会不会对教育产生误导。最起码,一个好端端的孩子,如果被测出来“许多不能”,家长心里不别扭吗,孩子又会怎么想?基因是人的“独特密码”,如果有关信息被恶意收集贩卖,后患更是巨大。这已不是钱打水漂的问题,而是将孩子的高度敏感信息送人,还给人家钱!如此“为了孩子好”,还是快省省吧。有关部门也应意识到,形形色色的基因检测可能存在隐患,不能任由其野蛮生长,该立规矩的立规矩,该设红线的设红线,才能给有关行当戴上必要的“紧箍咒”。这也是指导电商平台、媒体广告等上架或下架此类“商品”的依据。

Little chiang thought:\" genetic testing talent \"may become a variant of\" lineage theory \", worthy of vigilance. That is, to affirm or deny a person's potential life height from the \"bone \", or to label some people\" tall \"or to judge some people\" no \". From this point of view, this involves not only the maturity of genetic cognition, but also the ethical issues. In the field of medical science with more research on genes, whether to carry out a new research or application often has to go through the moral ethics examination. The aim of the review is to prevent the misuse of technology, avoid research bias, and set a moral line... \"Children's genetic testing\" is not carried out by the formal institutions, the first need to put a question mark. Moreover, such tests are suspected of touching the ethical red line. For parents, don't think it's \"innocuous\" to test a child, but rather think about whether the test will mislead education. At the very least, a good child, if measured \"many cannot \", parents do not feel uncomfortable, what will the child think? Genes are a \"unique code\" for people, and if the information is maliciously collected and sold, the consequences are even greater. This is no longer a matter of money, but the child's highly sensitive information to give back money! So \"for the good of the baby,\" save it. Relevant departments should also be aware that there may be a variety of genetic testing hidden dangers, cannot allow its barbaric growth, the rules of the establishment of the red line, the establishment of the red line, to put the necessary \"stirrups \". It is also the basis for guiding e-commerce platforms, media advertising, etc. to go on or off shelves such \"goods \".

小蒋的话:大家好,我是小蒋。国事,家事,天下事,天天都有新鲜事。你评,我评,众人评,百花齐放任君看。观点各有不同,角度各有侧重,只要我们尊重客观、理性公正。

Xiao Jiang's words: Hello everyone, I am Xiao Jiang. State affairs, family affairs, world affairs, new things every day. You judge, I judge, people judge, let a hundred flowers blossom. The viewpoints are different, the angles are different, so long as we respect objectivity, rationality and justice.


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